“And you never know when it’s going to affect you. Aches and pains. You can feel great one day and some days you wake up and think “This is a good day”. The next day you think, “What did I do yesterday? I wasn’t actually that much more active, but certainly my ankle is hurting”. (P11) |
“I love exercise but I’d be able to exercise and stuff, but I have to watch what I do because I get so tired. And so much pain, and the weight just will not come off”. (P3) |
“Both of them go together because...if it’s not because of the medication, you are eating too much. But because of the medication, especially the one I’m taking, Methotrexate, at first I feel sick. Then I don’t even see myself eat. I really eat”. (P6) |
“They’re [clinicians] on auto-pilot. They’re stressed! And not everyone is going to understand [their stress] like I understand. But they’re stressed, they’re overworked, they’re under pressure”. (P9) |
“Also with rheumatoid, it’s the mind-set and sometimes your tiredness doesn’t make you want to get up and do things. I mean, I always do because my motivation is I like my work, I get out and do it. I want to get on. I’m self-employed, so I need to work. And that’s helped actually”. (P11) |